During the first year of life, most babies grow a lot. The stoma may change size more often and you will likely have to try different types of collection systems to find the one that suits your child best.
At this age, babies are curious about their bodies and their environment. Occupy their hands with an interesting toy while handling the collection bag.
Toddlers (1-3 years)
These children are curious, quick and like to move. They may not wish to stay still while you are trying to provide care. Prepare all of your materials in advance and have the supplies ready nearby. This will allow you to provide the care more quickly.
It is at this age that it can be most helpful to have the help of another person when you are providing care.
These children are curious and interesting in being more independent. They can participate in simple tasks like washing the skin or removing the skin barrier.
Use short, simple explanations and instructions; these are best suited to their short attention spans.
School-age (6-12 years)
At this age, your child may wish to do more of the care. Encourage and support your child while they are learning how to provide their own care (eg, emptying the collection bag).
You will still want to keep an eye on the stoma site and to verify, at least once a week, that the site is in good condition.
Adolescents (13-17 years)
During this period of increased growth and activity, your teenager may need more hydration; encourage your child to drink plenty of fluids, especially during sports activities and when the weather is hot.
Adolescents are often sensitive about their appearance and shy, especially when there is something that is different about them. Respect your child’s wish for privacy as much as possible.
Do not hesitate to talk to your teen about relationships and intimacy; a mentor who has also lived with a stoma may be an important support.
Make sure your teen knows how to troubleshoot the common problems that may arise.
Encourage your teen to join a support group. There are lots of “YouTube” stories of adolescents and young adults with ostomies demonstrating how they do every day and unusual activities.
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