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Everyday tips

Clothing

  • Choose clothes that will facilitate access to the genitals (vulva, penis) when there is a need to undress.
  • For independent children in wheelchairs, consider clothing with elastic or Velcro closures. Talk to your healthcare team for specific suggestions.
  • Children with a Mitrofanoff stoma should wear comfortable clothes that are not too tight. It is not necessary to cover the stoma with a bandage; urine should not leak from the stoma because of the valve.

Bathing and swimming

  • Clean your child’s genitals or the Mitrofanoff stoma every day, when bathing and showering, and before each catheterization. Your child should participate in this care, if able.
  • Use a washcloth, warm water and mild body soap, that is fragrance and additive free (eg, “Dove”).
  • Do not use antiseptic soap because it can irritate the skin and cause infection.
  • Girls: open the labia gently, clean the vulva, inner labia and the perineum to the anus (going from front to back); rinse with water in the same way.
  • Boys: clean the penis, including the area under the fold of the foreskin if uncircumcised; rinse with water.
  • Mitrofanoff stoma: gently wash the stoma and the skin around the stoma and rinse with water.
  • Baby wipes that are fragrance and additive free can be used, without rinsing, for cleaning or before catheterization.
  • Your child may take a bath, shower or swim without special care.

Sleeping

  • Consider meal times and your child’s need for hydration to determine, with your care team, if it is necessary to do catheterizations during the night.
  • For some children, wearing a diaper at night may help.

Nutrition and hydration

  • With your care team, determine the schedule of daily catheterizations for your child according to:
    • the organization of the activities planned for the day (eg, travel, school, medical care, social activities, sports),
    • the best length of time in between two catheterizations, considering the child’s comfort and the risks of urine flowing backwards into the kidneys.
  • Take note your child’s liquid intake and the amount of urine collected during the day, as recommended by your healthcare team.
  • Encourage your child to drink throughout the day; smaller amounts in the evening may allow for the child to not need catheterization during the night.

Activities

  • Your child can usually continue his regular daily activities.
  • It is recommended to do a catheterization immediately before play or engaging in a sport.
  • Follow the recommendations of your team which are tailored to the specific needs of your child.

Travel and transportation

Always carry a ”spare kit” in case a catheterization is needed outside the house:

  • hand soap
  • cleaning wipes
  • 2 clean catheters
  • water-based libricant
  • container to collect urine

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Disclaimer: As medical and technical knowledge is constantly changing, this information is provided to you for educational purposes only. The information provided on this website is strictly provided on an “as is” basis without warranty of any kind, whether express or implied and should not at any time be considered as a substitute for professional advice from your physician or other qualified healthcare professional.

A collaboration of clinical experts across Quebec has taken every care to ensure that the information contained in this document is accurate, complete, and reflective of evidence-based practices. However, “Complex care at home for children” collaboration cannot and does not assume any responsibility for application of the content of this document or for any information that may be present in the websites cited as a reference. These web sites are provided for informational purposes only and do not represent the collaboration endorsement of any companies or products. Always consult your child’s physician and/or a qualified healthcare professional to learn more about recommendations specific to your child’s health needs.

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