Avoid exposing the pump and tubing to hot or cold temperatures. In cold weather, keep the pump and tubing under clothing and have your child wear a warm coat.
Use a cooler to store the nutrition solution bag and a bag to store equipment, including the “troubleshooting kit” described below.
When traveling by plane, keep the nutrition solution bag and equipment with you in the cabin. Request a letter from your child’s healthcare team which explains your child’s healthcare condition and need for parenteral nutrition.
Healthcare travel insurance is recommended; check your existing policies or purchase insurance so your child is covered in the case that a medical issue comes up while traveling. Always have a “troubleshooting kit” on hand while your child is on IV treatment; take this on any trips away from home. The kit should contain the following items:
needleless connector,
extension tubing,
syringe pre-filled with saline solution and locking solution,
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