PLEASE NOTE: The information in this section is meant as a general guide to help parents and caregivers with common issues and is not intended to replace the care provided by your child’s healthcare team.
Discuss your child’s unique needs with your healthcare team, including WHO and WHEN to contact when problems arise.
Urinary incontinence (leakage) between catheterizations
The urine does not flow or flows more slowly than usual through the catheter
The catheter is difficult to insert
Urine has an unusual odor or is milky, not clear
Bleeding after catheterization
Difficult catheter removal
Skin around the stoma of Mitrofanoff is: red swollen itchy, burns, or there are small bumps, abrasions or bleeding
Movement of the stoma of Mitrofanoff more than 0.5 cm from its usual position, whether sinking in or protruding out
Abdominal discomfort; pain and/or burning at the meatus or urethra
Fever with or without malaise: ≥ 38⁰C rectal or ≥ 37.5⁰C oral/armpit
For specific advice on your child or any other questions, do not hesitate to contact your child’s healthcare team.